1.
Facts on acute porphyria
When is the best time to be tested for an acute porphyria? ... Acute porphyria ia a term that includes four similar inherited diseases: acute intermittent ...
2.
Facts on porphyria
Altogether there are seven main types of porphyria, four are acute porphyrias ... For more information on the acute porphyrias, see the acute porphyria FAQs ...
3.
The British Porphyria Association newsletter
HELEN GIBBS BALL. May Ball in Memory of Helen Rosemary Gibbs on Monday 28th. May at 5pm. The venue will be Moreton Hall, Moreton Morrell, ...
4.
Facts on acute porphyria
UK support organisation for people with Porphyria. ... What can I do to reduce the risk of having an acute attack? Special Problems ...
5.
Porphyria Links
CLIMB is committed to fighting metabolic diseases through research, awareness and support. ... Spain: Asociación Española de Porfiria: www.porfiria.org ...
6.
Experiences of Porphyria
Although able to bring me out of attacks with Haem Arginate, the doctors have ... I now have Haem Arginate on a weekly basis and I have only had a few ...
7.
Porphyria Links
To search for information on porphyria, including sites in other languages, ... Cardiff Porphyria Service have a new web-site at www.cardiff-porphyria.org ...
8.
Why is it important to be careful with drugs in the acute ...
File Format: PDF/Adobe Acrobat - View as HTML discussing the risks with a porphyria specialist) ... suspected of having an acute porphyria (or are ... drugs for use by sufferers of acute porphyria. ...
9.
British Porphyria Association
British Porphyria Association. UK support organisation for people with Porphyria. This is a metabolic disease, often giving acute attacks.
10.
Porphyria Links
The Neuropathy Trust offers emotional support to people affected by Peripheral Neuropathy. Some Porphyria patients may be affected by peripheral neuropathy ...
